Advocate, Supporter, Survivor of Lupus ~ My Legacy

Having a chronic and lifelong autoimmune disease it made me think, "what kind of legacy do I want to leave behind for my friends, family, and most importantly my children to remember me by"? I certainly don't want anyone to remember me by "Oh she was so sick all of the time and complained about this or that". My oldest daughter made a comment once, "You never complain about how you feel". While that is true, I guess I don't want to burden the older girls and while their brothers are much younger and see me at my worst, I don't want the boys to remember me that way either.

The legacy I want my friends, family and children to remember me by, is that I love to be a Lupus Advocate. I truly get joy out of helping others & I want to spread the word of what Lupus is. The general population needs further education on what a true cruel mysterious disease this is. I make sure that I continue to spread the word, educate everyone in my path about Lupus and help those that have Lupus.

While my Lupus is still chronic, it helps me, while I'm helping others. It really takes my mind off how I'm feeling. 

On March 9, 2011 Benlysta was approved as the newest drug therapy to treat Lupus. This was the first drug to be released to treat Lupus in over 50 years. By spreading awareness, educating the general population, and donations it's every advocates hopes and dreams that it will not take another 50 ears before another drug therapy is released.

There's one month a year that is set aside for Lupus Awareness (May). But for me, every month & every day is Lupus Awareness. I will NOT stop spreading awareness. It's imperative that we continue to spread awareness about Lupus.

Therefore, I want to leave behind, my footprints in the sand, my legacy: to be known as an Advocate, supporter, and survivor of Lupus ~